July 22, 2022

The Fight for Access with Government Agencies

The Fight for Access with Government Agencies

For 17 years, the gastroparesis community has fought for the FDA to allow it access to a treatment they say is necessary to improve quality of life. Gastroparesis advocate Michael Smith details the efforts to make sure that patient voices spur action at the FDA. Plus, what this means for the broader impact of the FDA across the entire chronic disease community.

Terry and Dr. Bob also discuss the reignited conversation on drug pricing policies in Washington.  Kate speaks with migraine advocate Yuri about the misconceptions about this chronic illness and the struggle to get insurance coverage for necessary care.

Hosts: 

Terry Wilcox, Executive Director, Patients Rising

Dr. Robert Goldberg, “Dr. Bob,” Co-Founder and Vice President of the Center for Medicine in the Public Interest

Kate Pecora, Field Correspondent

Guests: 

Michael Smith, Former Vice President of G-PACT and volunteer advisor to the Oley Foundation

Yuri Cárdenas, Patient and Migraine Advocate 

Links: 

Dems try again on drug prices
FDA user fee timeline slipping, raising layoff-notice concerns

Feeling litigious, Vanda files another lawsuit against the FDA

Patients Rising Now Announces Spring Advocacy Masterclass Graduates

Register for the next Patients Rising Advocacy Masterclass

Need help?

The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at PatientsRisingConcierge.org

Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent?

Drop us a line: podcast@patientsrising.org

The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.