Patients Rising Podcast
Patients Rising Podcast
Patients Rising brings its unique and established brand of patient advocacy to a weekly podcast, featuring honest and helpful discussion about issues impacting those with chronic illness. Executive Director Terry Wilcox hosts the show, with Robert "Dr. Bob" Goldberg, Co-Founder and Vice President of the Center for Medicine in the Public Interest.
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Congress + the Debate Right Now Over the Cures of Tomorrow
Patients depend on the research and development cycle to produce innovative, life saving medicines for rare and chronic condition…
Rising Costs of Health Insurance
Premiums, deductibles, and copays continue to rise as insurance companies grow fat through mergers and monopolies. Host Terry Wil…
Why Your Care Costs So Much
You may have seen Johns Hopkins Hospital surgeon Dr. Marty Makary all over the national news this week, and he also joins the Pat…
Recent Episodes
The Multi-Billion Dollar Rx Middlemen: PBMs Explained
Sept. 23, 2022
Pharmacy Benefit Managers (PBMs) have become embedded in the ecosystem of drug pricing– but these middlemen are one of the reasons patients see high prices at the pharmacy counter. This episode is a crash course in everythin…
How Community Can Make Us Healthier
Sept. 16, 2022
An ongoing 10-year community-based project is improving the health of residents through investments in long-term health programs. Esther Dyson, the founder of Wellville, explains how community collaboration and resident invo…
How New Drugs are Made
Sept. 9, 2022
It takes decades of research, millions of dollars in funding, and numerous failed attempts to develop and approve a new drug for patients. Private investors have helped fund pharmaceutical research and development to bring p…
Early Diagnosis: A Game-Changer for Patients
Sept. 2, 2022
In the rare disease community, early diagnosis can put patients on a treatment plan faster and improve outcomes. But that depends on accessible and affordable screenings, genetic testing, and holistic care. Thankfully, there…
AARP’s Conflict of Interest
Aug. 26, 2022
Is your Medicare plan giving you the best deal? It’s a tricky question since seniors have no tools to easily determine if their plan has the best price or coverage compared to others. There’s also a lack of transparency in h…
Genetic Testing Resources
Aug. 19, 2022
At-home genetic testing allows expecting parents to see if they might be carriers for genetic conditions, like cystic fibrosis or sickle cell. But the data from these tests are only one part of the equation. Patients need ac…
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About the Hosts
Terry Wilcox - Host
Host/Producer
Terry Wilcox helps patients find their voice and become advocates for their health care. As the co-founder and executive director of Patients Rising, Terry manages the organization’s day-to-day operations to help every patient gain access to the right treatment. An expert in multimedia storytelling, Terry uses her background in entertainment to present powerful personal patient narratives. She has a track record of building coalitions with survivors, caregivers, and medical professionals. A regular opinion writer on health policy and how it affects patients, she has been published in Fortune, the Boston Globe, The Hill, Morning Consult, Real Clear Health, Inside Sources, and more.
Bob Goldberg, PhD - Host
Host
Robert Goldberg is Vice President and co-founder of the Center for Medicine in the Public Interest (www.cmpi.org), a non-profit organization that advocates for consumer access to public health innovations. Prior to founding CMPI, Dr. Goldberg was Director of the Manhattan Institute's Center for Medical Progress and Chairman of its 21st Century FDA Task Force that recommended ways to reduce the time and cost of getting innovative medicines to patients. Many of these recommendations are included in the 21st Century Cures Act. Dr. Goldberg received his PhD in Politics from Brandeis University in 1984, is a devoted Yankee fan, father of two children, Sara 35 and Zach, 32, and grandfather to Miles, age 4.
Kate Pecora - Field Correspondent
Kate Pecora is an impassioned advocate for rare and chronic disease, disability justice, and healthcare policy. She is diagnosed with Spinal Muscular Atrophy Type III, and lives in Boston, Massachusetts. Kate is currently (e)traveling across the country in search of the most compelling stories about patient access, affordability, and quality. Kate writes a weekly blog and helps patients tell their stories every week on the show.
Robert Johnson - News Host
Robert Johnson is an award-winning podcast host and producer who got his start reporting and anchoring radio news as a teenager in rural Arizona in the early 1980s. Before he graduated high school, the Associated Press declared him the "youngest radio news director in America." He has covered news for ABC Radio, Mutual Radio Networks, and news-talk radio stations in Phoenix and Tucson. He is the recipient of numerous awards for his broadcast journalism work, including a prestigious Associated Press Managing Editors Award, an honor usually reserved for print journalists.