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Patients Rising brings its unique and established brand of patient advocacy to a weekly podcast, featuring honest and helpful discussion about issues impacting those with chronic illness. CEO Terry Wilcox hosts the show, with Robert "Dr. Bob" Goldberg, Co-Founder and Vice President of the Center for Medicine in the Public Interest.
Ahead of Rare Disease Day, Congresswoman Cathy McMorris Rodgers (WA-05) joins the podcast to discuss new legislation that would ban the use of a discriminatory health care metric, quality adjusted life year, or QALY. Learn how the QALY hurts...
Stephen Kay took a job 10 hours away from his wife. Why? Because he needed insurance that would cover the costs of her multiple sclerosis care. While she had Medicare before turning 65, she was unable to purchase a supplemental …
Is the cost of your health care going up? Have you struggled to access the care your doctor recommends? A group of physicians and health care experts are working to address these growing problems and make care patient-centered. They propose...
Sept. 25, 2023
It’s clear that we need to fix the way we measure the value of new medicines. Current methods fail to account for the benefits to caregivers, the long-term savings from keeping a job or avoiding the hospital, and the countle…
Sept. 18, 2023
With flu season fast approaching, Dr. joins us to discuss all of his vaccine recommendations, including COVID-19, RSV, and flu vaccines, population immunity, and targeting high-risk groups. Plus, Terry and Bob talk about wh…
Sept. 11, 2023
Hope can be powerful when receiving a diagnosis… but are we able to quantify just how powerful it really is? joins us to discuss how she believes the U.S. should be using “hope” as a measurement of both social and economic …
Aug. 14, 2023
Mark King’s advocacy journey began in the 1980s after he was diagnosed with HIV. Now, he’s written a book that discusses his advocacy journey, the struggles of living with the disease, and the stigma that comes with it. Hear…
Aug. 7, 2023
For Neal Shah, life was going according to plan. Then suddenly, he became a caregiver overnight. Hear how his experience pushed him to create CareYaya, which he calls the “Uber of caregiving.” It’s a matchmaking system that …
July 31, 2023
Investing in healthcare like we invest in curbing carbon emissions. It’s a novel idea, but something that Dr. Andrea Feigl, the Founder and CEO of Health Finance Institute, says could change the future of health, specificall…
Host/Producer
Terry Wilcox helps patients find their voice and become advocates for their health care. As the co-founder and executive director of Patients Rising, Terry manages the organization’s day-to-day operations to help every patient gain access to the right treatment. An expert in multimedia storytelling, Terry uses her background in entertainment to present powerful personal patient narratives. She has a track record of building coalitions with survivors, caregivers, and medical professionals. A regular opinion writer on health policy and how it affects patients, she has been published in Fortune, the Boston Globe, The Hill, Morning Consult, Real Clear Health, Inside Sources, and more.
Host
Robert Goldberg is Vice President and co-founder of the Center for Medicine in the Public Interest (www.cmpi.org), a non-profit organization that advocates for consumer access to public health innovations. Prior to founding CMPI, Dr. Goldberg was Director of the Manhattan Institute's Center for Medical Progress and Chairman of its 21st Century FDA Task Force that recommended ways to reduce the time and cost of getting innovative medicines to patients. Many of these recommendations are included in the 21st Century Cures Act. Dr. Goldberg received his PhD in Politics from Brandeis University in 1984, is a devoted Yankee fan, father of two children, Sara 35 and Zach, 32, and grandfather to Miles, age 4.
