Patients Rising Podcast
Patients Rising Podcast
Patients Rising brings its unique and established brand of patient advocacy to a weekly podcast, featuring honest and helpful discussion about issues impacting those with chronic illness. Executive Director Terry Wilcox hosts the show, with Robert "Dr. Bob" Goldberg, Co-Founder and Vice President of the Center for Medicine in the Public Interest.
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Why Your Care Costs So Much
You may have seen Johns Hopkins Hospital surgeon Dr. Marty Makary all over the national news this week, and he also joins the Pat…
Living with Lupus
This week, the Institute for Clinical and Economic Review (ICER) deliberates the fate of insurance coverage for patients with lup…
Pro-Patient Agenda Revealed
Congress and the new Biden White House are ready to hit the ground running in 2021. So we’re here to make sure patient needs are …
Episodes
Balanced Approach to Opioids
July 30, 2021
Opioid overdoses are rising as the COVID-19 pandemic continues. In 2020, overdose deaths rose by 30%. However, many chronic disease patients rely on prescription opioids for their healthcare regimen. We examine a balanced policy approach to combat the pandemic while protecting patients with chronic…
Alzheimer’s Drug Debate
July 23, 2021
The high price tag for a new Alzheimer’s drug has fueled the ongoing drug price debate. But will patients really pay sticker price? (Spoiler alert: No!). Co-host Dr. Bob Goldberg explains the research/value assessment of the drug, while Host Terry Wilcox discusses the growing barriers to access the…
Take Control of Your Health Data
July 16, 2021
Access to all of your health data - MRIs, screenings, and lab results - could be right at your fingertips. COVID-19 put healthcare tech companies into high gear to deliver health data to patients. The end result? Empowered patients, improved clinical trials, and greater control over healthcare deci…
Is Your Medical Equipment Safe?
July 9, 2021
Patients depend on safety and accuracy of medical equipment. If they’re improperly repaired, it could derail a patient’s healthcare journey and risk their health and safety. The Right to Repair Act aims to expedite medical device repairs by giving third-party groups access to the original manufactu…
Legal Issues with Cancer
July 2, 2021
Doctor’s visits, tests, procedures and therapies are just one part of a healthcare journey. Knowing and understanding the laws that govern and protect your right to work, along with health insurance coverage and reimbursement, are another challenge. Monica Bryant, a cancer rights attorney and chief…
Crash Course: FDA Advisory Committees
June 25, 2021
Drama continues to unfold following the FDA’s controversial approval of a new Alzhiemer’s treatment. Members of the FDA’s advisory committee voted against approval, and some members resigned in protest. But how does this impact you or loved ones with chronic disease? On this episode: Peter Pitts, a…
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About the Hosts
Terry Wilcox - Host
Host/Producer
Terry Wilcox helps patients find their voice and become advocates for their health care. As the co-founder and executive director of Patients Rising, Terry manages the organization’s day-to-day operations to help every patient gain access to the right treatment. An expert in multimedia storytelling, Terry uses her background in entertainment to present powerful personal patient narratives. She has a track record of building coalitions with survivors, caregivers, and medical professionals. A regular opinion writer on health policy and how it affects patients, she has been published in Fortune, the Boston Globe, The Hill, Morning Consult, Real Clear Health, Inside Sources, and more.
Bob Goldberg, PhD - Host
Host
Robert Goldberg is Vice President and co-founder of the Center for Medicine in the Public Interest (www.cmpi.org), a non-profit organization that advocates for consumer access to public health innovations. Prior to founding CMPI, Dr. Goldberg was Director of the Manhattan Institute's Center for Medical Progress and Chairman of its 21st Century FDA Task Force that recommended ways to reduce the time and cost of getting innovative medicines to patients. Many of these recommendations are included in the 21st Century Cures Act. Dr. Goldberg received his PhD in Politics from Brandeis University in 1984, is a devoted Yankee fan, father of two children, Sara 35 and Zach, 32, and grandfather to Miles, age 4.
Kate Pecora - Field Correspondent
Kate Pecora is an impassioned advocate for rare and chronic disease, disability justice, and healthcare policy. She is diagnosed with Spinal Muscular Atrophy Type III, and lives in Boston, Massachusetts. Kate is currently (e)traveling across the country in search of the most compelling stories about patient access, affordability, and quality. Kate writes a weekly blog and helps patients tell their stories every week on the show.
Robert Johnson - News Host
Robert Johnson is an award-winning podcast host and producer who got his start reporting and anchoring radio news as a teenager in rural Arizona in the early 1980s. Before he graduated high school, the Associated Press declared him the "youngest radio news director in America." He has covered news for ABC Radio, Mutual Radio Networks, and news-talk radio stations in Phoenix and Tucson. He is the recipient of numerous awards for his broadcast journalism work, including a prestigious Associated Press Managing Editors Award, an honor usually reserved for print journalists.