Patients Rising Podcast
Patients Rising Podcast
Patients Rising brings its unique and established brand of patient advocacy to a weekly podcast, featuring honest and helpful discussion about issues impacting those with chronic illness. Executive Director Terry Wilcox hosts the show, with Robert "Dr. Bob" Goldberg, Co-Founder and Vice President of the Center for Medicine in the Public Interest.
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Congress + the Debate Right Now Over the Cures of Tomorrow
Patients depend on the research and development cycle to produce innovative, life saving medicines for rare and chronic condition…
Rising Costs of Health Insurance
Premiums, deductibles, and copays continue to rise as insurance companies grow fat through mergers and monopolies. Host Terry Wil…
Why Your Care Costs So Much
You may have seen Johns Hopkins Hospital surgeon Dr. Marty Makary all over the national news this week, and he also joins the Pat…
Recent Episodes
How to See Hospital Prices
Aug. 12, 2022
Hospitals and insurers are now required to share their prices and negotiated rates with the public. The problem? Most of the data is inaccessible to patients. Marcus Dorstel, Vice President of Operations at Turquoise Health,…
Top Things You Didn’t Know About Congress’ Drug Pricing Bill
Aug. 5, 2022
Congress inches closer to a massive, 725-page spending bill referred to as “Reconciliation.” It includes several drug pricing provisions that claim to lower Rx costs for seniors. But a closer look reveals that those savings …
Nonopioid Solutions for Chronic Pain
July 29, 2022
New procedures and nonopioid pain management give patients cutting-edge treatment options. But they’re frequently out of reach due to a lack of insurance coverage. Hosts Terry and Bob discuss how the bipartisan NOPAIN Act se…
Terry’s Take: Why Price Negotiation Won’t Lower Rx Costs
July 27, 2022
In this special bonus episode, Patients Rising Now Executive Director Terry Wilcox provides her perspective as a caregiver to seniors amidst ongoing debates in Congress over how to lower drug costs. She shares why Medicare p…
The Fight for Access with Government Agencies
July 22, 2022
For 17 years, the gastroparesis community has fought for the FDA to allow it access to a treatment they say is necessary to improve quality of life. Gastroparesis advocate Michael Smith details the efforts to make sure that …
Can Biosimilars Save You Money?
July 15, 2022
Biosimilars have the potential to lower costs. But due to middlemen like pharmacy benefit managers (PBMs), those savings don’t always trickle down to patients at the pharmacy counter. How can we fix this system? Julie Reed, …
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About the Hosts
Terry Wilcox - Host
Host/Producer
Terry Wilcox helps patients find their voice and become advocates for their health care. As the co-founder and executive director of Patients Rising, Terry manages the organization’s day-to-day operations to help every patient gain access to the right treatment. An expert in multimedia storytelling, Terry uses her background in entertainment to present powerful personal patient narratives. She has a track record of building coalitions with survivors, caregivers, and medical professionals. A regular opinion writer on health policy and how it affects patients, she has been published in Fortune, the Boston Globe, The Hill, Morning Consult, Real Clear Health, Inside Sources, and more.
Bob Goldberg, PhD - Host
Host
Robert Goldberg is Vice President and co-founder of the Center for Medicine in the Public Interest (www.cmpi.org), a non-profit organization that advocates for consumer access to public health innovations. Prior to founding CMPI, Dr. Goldberg was Director of the Manhattan Institute's Center for Medical Progress and Chairman of its 21st Century FDA Task Force that recommended ways to reduce the time and cost of getting innovative medicines to patients. Many of these recommendations are included in the 21st Century Cures Act. Dr. Goldberg received his PhD in Politics from Brandeis University in 1984, is a devoted Yankee fan, father of two children, Sara 35 and Zach, 32, and grandfather to Miles, age 4.
Kate Pecora - Field Correspondent
Kate Pecora is an impassioned advocate for rare and chronic disease, disability justice, and healthcare policy. She is diagnosed with Spinal Muscular Atrophy Type III, and lives in Boston, Massachusetts. Kate is currently (e)traveling across the country in search of the most compelling stories about patient access, affordability, and quality. Kate writes a weekly blog and helps patients tell their stories every week on the show.
Robert Johnson - News Host
Robert Johnson is an award-winning podcast host and producer who got his start reporting and anchoring radio news as a teenager in rural Arizona in the early 1980s. Before he graduated high school, the Associated Press declared him the "youngest radio news director in America." He has covered news for ABC Radio, Mutual Radio Networks, and news-talk radio stations in Phoenix and Tucson. He is the recipient of numerous awards for his broadcast journalism work, including a prestigious Associated Press Managing Editors Award, an honor usually reserved for print journalists.