Patients Rising Podcast

Patients Rising Podcast

Patients Rising brings its unique and established brand of patient advocacy to a weekly podcast, featuring honest and helpful discussion about issues impacting those with chronic illness. Executive Director Terry Wilcox hosts the show, with Robert "Dr. Bob" Goldberg, Co-Founder and Vice President of the Center for Medicine in the Public Interest.

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Recent Episodes

Accelerated Approval Matters

July 1, 2022

Accelerated approval drugs have given patients access to care they otherwise would have waited years for. A new study shows that these drugs account for less than 1% of Medicaid spending - yet programs have placed restrictio…

How Chronic Illness Impacts Families

June 24, 2022

Keyla Caba is a patient advocate who lives with Crohn’s disease and ulcerative colitis. Her son was also recently diagnosed with a chronic disease, and she shares the challenges of being both a patient and a caregiver, menta…

Patients on Capitol Hill

June 17, 2022

This week, patients with chronic disease from across the country convened in Washington D.C. for the We the Patients Fly-In. They met with members of Congress and their staff to advocate for several pro-patient health care b…

The Future of Pharmacies

June 10, 2022

No insurance? No problem. Blueberry Pharmacy in Pittsburgh is forging the path for a new kind of pharmacy. By cutting out the middlemen in the supply chain, Blueberry Pharmacy is able to provide its customers with inexpensiv…

The Power of Patient Data

June 3, 2022

Precision medicine harnesses the power of genetic data, which can improve treatment regimens and overall outcomes for patients. But accessing that data remains another challenge. Field correspondent Kate Pecora speaks with a…

Formula Crisis Hurts Chronic Disease Community

May 27, 2022

The formula shortage crisis has been devastating for patients with rare metabolic conditions, like PKU, who depend on specialty formulas daily. We hear from patients and families impacted by the shortage, including Lillian I…

About the Hosts

Terry Wilcox - Host Profile Photo

Terry Wilcox - Host

Host/Producer

Terry Wilcox helps patients find their voice and become advocates for their health care. As the co-founder and executive director of Patients Rising, Terry manages the organization’s day-to-day operations to help every patient gain access to the right treatment. An expert in multimedia storytelling, Terry uses her background in entertainment to present powerful personal patient narratives. She has a track record of building coalitions with survivors, caregivers, and medical professionals. A regular opinion writer on health policy and how it affects patients, she has been published in Fortune, the Boston Globe, The Hill, Morning Consult, Real Clear Health, Inside Sources, and more.

Bob Goldberg, PhD - Host Profile Photo

Bob Goldberg, PhD - Host

Host

Robert Goldberg is Vice President and co-founder of the Center for Medicine in the Public Interest (www.cmpi.org), a non-profit organization that advocates for consumer access to public health innovations. Prior to founding CMPI, Dr. Goldberg was Director of the Manhattan Institute's Center for Medical Progress and Chairman of its 21st Century FDA Task Force that recommended ways to reduce the time and cost of getting innovative medicines to patients. Many of these recommendations are included in the 21st Century Cures Act. Dr. Goldberg received his PhD in Politics from Brandeis University in 1984, is a devoted Yankee fan, father of two children, Sara 35 and Zach, 32, and grandfather to Miles, age 4.

Kate Pecora - Field Correspondent Profile Photo

Kate Pecora - Field Correspondent

Kate Pecora is an impassioned advocate for rare and chronic disease, disability justice, and healthcare policy. She is diagnosed with Spinal Muscular Atrophy Type III, and lives in Boston, Massachusetts. Kate is currently (e)traveling across the country in search of the most compelling stories about patient access, affordability, and quality. Kate writes a weekly blog and helps patients tell their stories every week on the show.

Robert Johnson - News Host Profile Photo

Robert Johnson - News Host

Robert Johnson is an award-winning podcast host and producer who got his start reporting and anchoring radio news as a teenager in rural Arizona in the early 1980s. Before he graduated high school, the Associated Press declared him the "youngest radio news director in America." He has covered news for ABC Radio, Mutual Radio Networks, and news-talk radio stations in Phoenix and Tucson. He is the recipient of numerous awards for his broadcast journalism work, including a prestigious Associated Press Managing Editors Award, an honor usually reserved for print journalists.