Patients Rising Podcast

Patients Rising Podcast

Patients Rising brings its unique and established brand of patient advocacy to a weekly podcast, featuring honest and helpful discussion about issues impacting those with chronic illness. Executive Director Terry Wilcox hosts the show, with Robert "Dr. Bob" Goldberg, Co-Founder and Vice President of the Center for Medicine in the Public Interest.

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Recent Episodes

Can Mark Cuban Deliver Cheaper RX?

May 20, 2022

A shark has entered the prescription drug waters. Entrepreneur and ABC Shark Tank investor Mark Cuban founded the ‘Mark Cuban Cost Plus Drug Company’ which aims to slash prices, improve transparency, and provide greater conv…

Have Health Plans Abandoned Rare Disease Patients?

May 13, 2022

“Your medication is no longer covered” are the words no patient wants to hear. Yet this is a common occurrence for patients with rare diseases who are on private health insurance plans. In an effort for plans to save money, …

Updates from the Frontlines of Medical Research

May 6, 2022

In recognition of ALS Awareness Month, we get a report from the frontlines of ALS research, including new breakthroughs that impact patients. Dr. Sharon Hesterlee, the Chief Research Officer at the Muscular Dystrophy Associa…

How Nurse Navigators Can Help You

April 29, 2022

Have you ever felt overwhelmed or confused in your health care journey? Many patients juggle numerous phone calls and appointments with labs, pharmacists, and specialists, while also trying to understand what is and isn’t co…

Patient Advocacy on Capitol Hill

April 22, 2022

Frustrated with the health care system? Want to improve health care access, affordability, and transparency for you or a loved one? Learn how to make your voice heard by decision-makers on Capitol Hill by joining us for our …

Transportation Tips for Patients

April 15, 2022

Transportation to and from appointments, or lack thereof, is a major hurdle facing patients who contact our Patients Rising Concierge team. Any delays caused by transportation have a domino effect on a patient’s healthcare j…

About the Hosts

Terry Wilcox - Host Profile Photo

Terry Wilcox - Host

Host/Producer

Terry Wilcox helps patients find their voice and become advocates for their health care. As the co-founder and executive director of Patients Rising, Terry manages the organization’s day-to-day operations to help every patient gain access to the right treatment. An expert in multimedia storytelling, Terry uses her background in entertainment to present powerful personal patient narratives. She has a track record of building coalitions with survivors, caregivers, and medical professionals. A regular opinion writer on health policy and how it affects patients, she has been published in Fortune, the Boston Globe, The Hill, Morning Consult, Real Clear Health, Inside Sources, and more.

Bob Goldberg, PhD - Host Profile Photo

Bob Goldberg, PhD - Host

Host

Robert Goldberg is Vice President and co-founder of the Center for Medicine in the Public Interest (www.cmpi.org), a non-profit organization that advocates for consumer access to public health innovations. Prior to founding CMPI, Dr. Goldberg was Director of the Manhattan Institute's Center for Medical Progress and Chairman of its 21st Century FDA Task Force that recommended ways to reduce the time and cost of getting innovative medicines to patients. Many of these recommendations are included in the 21st Century Cures Act. Dr. Goldberg received his PhD in Politics from Brandeis University in 1984, is a devoted Yankee fan, father of two children, Sara 35 and Zach, 32, and grandfather to Miles, age 4.

Kate Pecora - Field Correspondent Profile Photo

Kate Pecora - Field Correspondent

Kate Pecora is an impassioned advocate for rare and chronic disease, disability justice, and healthcare policy. She is diagnosed with Spinal Muscular Atrophy Type III, and lives in Boston, Massachusetts. Kate is currently (e)traveling across the country in search of the most compelling stories about patient access, affordability, and quality. Kate writes a weekly blog and helps patients tell their stories every week on the show.

Robert Johnson - News Host Profile Photo

Robert Johnson - News Host

Robert Johnson is an award-winning podcast host and producer who got his start reporting and anchoring radio news as a teenager in rural Arizona in the early 1980s. Before he graduated high school, the Associated Press declared him the "youngest radio news director in America." He has covered news for ABC Radio, Mutual Radio Networks, and news-talk radio stations in Phoenix and Tucson. He is the recipient of numerous awards for his broadcast journalism work, including a prestigious Associated Press Managing Editors Award, an honor usually reserved for print journalists.