Dec. 10, 2021

Rare Disease + the Fight for Funding

Rare Disease + the Fight for Funding
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Today’s medical research and development creates the cures of tomorrow. But it requires immense amounts of funding to develop safe and effective drugs, treatments, and medical devices. In the rare disease space, funding is in short supply.

Hear how rare disease organizations harness the power of grassroots advocacy to raise support for their community. Dawn Ireland, President and Founder of Congenital Diaphragmatic Hernia (CDH) International, shares how she launched the first CDH organization from her living room over twenty years ago, their ongoing successes, and the road ahead. 

Plus, parents Zach and Shelby Gallegos share the story of their nearly one-year-old daughter, Reagan, who is a CDH survivor. They give listeners a glimpse into their lives and the challenges of this rare birth defect. 


Terry Wilcox, Executive Director, Patients Rising

Dr. Robert Goldberg, “Dr. Bob,” Co-Founder and Vice President of the Center for Medicine in the Public Interest

Kate Pecora, Field Correspondent, Patients Rising


Dawn Ireland, Founder and President, CDH International

Zach and Shelby Gallegos, Parents to Reagan

Stephanie Tomlinson, patient correspondent


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The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising.