May 27, 2022

Formula Crisis Hurts Chronic Disease Community

Formula Crisis Hurts Chronic Disease Community

The formula shortage crisis has been devastating for patients with rare metabolic conditions, like PKU, who depend on specialty formulas daily. We hear from patients and families impacted by the shortage, including Lillian Isabella and Sarah Chamberlin, executive director of National PKU News. 

But patients have struggled to access and afford these formulas for years, which come with high price tags and aren’t always covered under insurance. A bill in Congress, the Medical Nutrition Equity Act, aims to change that.

And ahead of Memorial Day weekend, Terry and Dr. Bob discuss three health care bills in Congress drafted to improve health care access for veterans.


Terry Wilcox, Executive Director, Patients Rising

Dr. Robert Goldberg, “Dr. Bob,” Co-Founder and Vice President of the Center for Medicine in the Public Interest

Kate Pecora, Field Correspondent


Sarah Chamberlin, Executive Director, National PKU News 

Lillian Isabella, Patient Advocate


National PKU News

The Effects of the Abbott Hold on the Metabolic Community

Patients and Providers for Medical Nutrition Equity

Metabolic Formula | Patient Stories

Fiscal Year 2022 Veterans Affairs Major Medical Facility Authorization Act

Patient Advocate Tracker Act


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The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising.