March 26, 2021

Living with Lupus

Living with Lupus

This week, the Institute for Clinical and Economic Review (ICER) deliberates the fate of insurance coverage for patients with lupus. 

In this episode, Mollee Huffman shares her diagnosis of lupus, how it impacted her Navy career and day-to-day life. 

Plus, Terry and Dr. Bob look at how hospitals are making it impossible for patients to Google search their prices, drug pricing legislation in Congress (H.R. 3), and what ICER’s poor track record for undervaluing drugs signals to the lupus community awaiting their review.


Mollee Huffman

Chronic Illness Advocate and Patient


Mollee Huffman

ICER’s Lupus Nephritis Public Meeting (3/26)

Hospitals Hide Pricing Data From Search Results

States are Eyeing Public Option Health Plans. Many Obstacles Stand in the Way. 

House Passes Bill That Would Extend Medicare Sequester Cuts Until December

Drug Pricing, Climate, Immigration: House Dems Eye ‘Kitchen Sink’ for Next Big Bill

ICYMI: Last Word: ICER’s flawed pricing recommendations for new high cholesterol treatments

Patient Correspondent: Megan Staley

Patients Rising Concierge 

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